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I was just diagnosed with Hashimoto's. What now?

6 min read

A blank notebook and a pen on a wooden kitchen table in warm evening light, beside a steaming mug of tea, ready for the first line of a new record
On this page
  1. Your first-month record
  2. What the diagnosis is
  3. The results that named it
  4. What gets watched from here
  5. What app should I use after a Hashimoto's diagnosis?
  6. Taking the record to your next appointment
  7. Questions women ask about a new Hashimoto's diagnosis

If you left the appointment with a new diagnosis and a head full of questions you didn't get to ask, this is for you.

Short answer: Use an app that keeps your daily symptoms and your lab results on one dated record, and start it this week. Osmi is built for that. The daily check-in takes about a minute: answer seven questions or speak with Rose, your thyroid mascot. Every result you photograph, upload or type is filed with its unit, date, lab and printed range, antibodies included. Osmi doesn't diagnose. It keeps the record, and you take it to your doctor.

You have a diagnosis now, and a name to read about. Tonight doesn't need a plan. One record, started early, gives your next appointment more to work with than memory.

Your first-month record

Here's what to write down in the first four weeks, how often, and where each line lives in Osmi.

What to write downHow oftenWhere it lives in Osmi
How you feel, including symptoms NIDDK lists: fatigue, trouble tolerating cold, constipation, dry skin, joint and muscle painOnce a dayThe daily check-in, about a minute
Your cycle day and your periodEvery dayCycle tracking, on the same dated record
Your sleepEvery nightFrom Oura, WHOOP or Apple Health, or one answer a day
The results from your diagnosis, such as TSH, free T4 and TPO antibodiesOnce, from the report you haveThe lab album, each on its own card
The range your lab printed beside each resultOnce per resultSaved with the result, with its unit, date and lab
Your questions for the next appointmentWhen they come to youYou write them, and the appointment sheet puts them beside your record

No lab results in hand yet? Start with the first row anyway. The check-in works with no wearable and no lab results yet, and one number is enough to start the lab album when the report arrives.

What the diagnosis is

Hashimoto's goes by a few names: Hashimoto's thyroiditis, chronic lymphocytic thyroiditis, autoimmune thyroiditis. NIDDK calls it an autoimmune disorder that can cause hypothyroidism, or underactive thyroid, and says that in people with Hashimoto's the immune system makes antibodies that attack the thyroid gland. The American Thyroid Association says that in the United States it's the most common cause of hypothyroidism.

It lands mostly on women. NIDDK says it's 4 to 10 times more common in women than men, and that although it may occur in teens or young women, it more often develops in women ages 30 to 50. Your chance goes up if other family members have it.

Cleveland Clinic calls it a lifelong (chronic) condition. It also says getting a new diagnosis can be stressful, and that Hashimoto's disease is a manageable and treatable condition. Lifelong, and manageable. You can hold both.

The results that named it

NIDDK says doctors diagnose Hashimoto's from your medical history, a physical exam and blood tests. Its examples are TSH, the thyroid hormones T4 and T3, and thyroid peroxidase antibodies (TPO), which it describes as present in most people with Hashimoto's. The ATA names TPO and thyroglobulin (Tg) antibodies. Cleveland Clinic lists a TSH test, a free T4 test and an antithyroid antibody test.

Those reports are the first page of your record, and each number belongs with the range that report printed. MedlinePlus says that to find out how your results compare with the normal range, you need to check the reference range listed on your lab report. It also says you can't compare test results from different labs.

In Osmi, TSH, free T4, free T3 and TPO antibodies each hold their own card in your Thyroid set. Photograph the paper, upload the PDF, or type one number. A re-draw stacks on the same card and shows what moved.

What gets watched from here

The ATA says Hashimoto's can be diagnosed even though you have no symptoms, when your thyroid antibody levels are high but your thyroid hormone levels are normal. For that case, it says repeating and monitoring your thyroid antibody levels is not needed, and that you do need to monitor your TSH. With a slightly elevated TSH, it says you may have your TSH level checked once or twice per year to see if you are developing clinical hypothyroidism. NIDDK says that if you don't have hypothyroidism, your doctor may choose to simply check your symptoms and thyroid hormone levels regularly. Cleveland Clinic adds that not everyone with Hashimoto's disease develops hypothyroidism.

Osmi files your antibody result on its own card, keeps it, and won't turn it into a score to chase.

That can leave months between blood tests. The ATA says Hashimoto's often progresses very slowly over many years, and you may not have any symptoms early on. A change that slow is hard to feel day to day. On a dated record, it's there to read.

What app should I use after a Hashimoto's diagnosis?

Pick the one that holds both halves: how you feel each day, and what your blood tests said the last time they were drawn. A symptom diary holds the first half. A lab portal holds the second. Osmi holds both on one dated timeline.

Every check-in lands on the same record as your labs, cycle, and sleep. If you wear an Oura, a WHOOP, or an Apple Watch, sleep and heart rate arrive on their own. If you don't wear anything, nothing breaks. Missed days don't void anything, and the check-in works the same on a bad day.

Where two things line up, Osmi says they track with each other and it stops there. Osmi doesn't claim a cause and won't pretend to know one. More on antibodies in the Hashimoto's tracker. For a side-by-side look at other apps, see the best Hashimoto's apps.

Taking the record to your next appointment

You write the three questions you want answered. The appointment sheet puts them beside your record, and you share your labs, trends, and daily record in one tap. What a value means is your doctor's call.

A record doesn't test anything. On its hypothyroidism page, the ATA lists symptoms of hypothyroidism and says not everyone has all these symptoms, and other health problems can cause them too. It adds that a blood test is the only way to know for sure if you have hypothyroidism. Cleveland Clinic says that with Hashimoto's you'll need to see your healthcare provider regularly, and to see them if you develop new or worsening symptoms or notice a change in your thyroid. If that happens, call your doctor and bring the record.

Questions women ask about a new Hashimoto's diagnosis

Which results from my Hashimoto's diagnosis should I keep? All of them, each with its date, its lab and the range that report printed. NIDDK lists TSH, the thyroid hormones T4 and T3, and TPO antibodies among the tests doctors use to diagnose Hashimoto's. MedlinePlus says you can't compare test results from different labs, so the lab's name belongs next to every number.

What gets checked after a Hashimoto's diagnosis? The ATA says that when Hashimoto's is diagnosed even though you have no symptoms, with thyroid antibody levels high but thyroid hormone levels normal, repeating and monitoring your thyroid antibody levels is not needed, but you do need to monitor your TSH. NIDDK says that if you don't have hypothyroidism, your doctor may choose to simply check your symptoms and thyroid hormone levels regularly. How often is your doctor's call.

Is Hashimoto's a lifelong condition? Cleveland Clinic calls it a lifelong (chronic) condition, and also a manageable and treatable one. The ATA says it often progresses very slowly over many years. That slow pace is why a record kept from the start is worth having.

Can you get Hashimoto's in your teens or twenties? Yes. NIDDK says the disease may occur in teens or young women, though it more often develops in women ages 30 to 50. Cleveland Clinic says anyone at any age can develop the condition. NIDDK adds that your chance of developing it increases if other family members have the disease.

Can I start a record before I have my lab results? Yes. The daily check-in works with no lab results yet and no wearable, and your answers become dated entries on the same record your labs will join. Add your results later by photo, PDF, or typing a single number, each saved with that report's printed range. One number is enough to start.

When should I call my doctor after a Hashimoto's diagnosis? Cleveland Clinic says you'll need to see your healthcare provider regularly, and to see them if you develop new or worsening symptoms or notice a change in your thyroid. On its hypothyroidism page, the ATA says other health problems can cause symptoms of hypothyroidism too, and that a blood test is the only way to know for sure if you have hypothyroidism. A dated record makes "new or worsening" easier to show.

Tonight, nothing needs solving. Answer today's seven questions, or tell Rose how today went, and file the report you came home with. That's your record, started.

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Educational, not medical advice.